Pssst ...is your life being rearranged?
You are not alone. Alzheimer’s and dementia will turn your life inside out and upside down. In fact, there are many days you won’t know if you are coming or going.
Susan Miller knows those days. Her husband was diagnosed with Early-Onset Alzheimer’s. She became the long distance caregiver for her father’s medical issues, followed by her mother’s diagnosis of dementia and then a diagnosis of Alzheimer’s for her mother-in-law. After decades of caregiving and years of widowhood, Susan met a wonderful widower, only to discover signs of dementia.My Life Rearranged gives voice to what many caregivers think, but are reluctant to admit.
A teacher, a mother, a salesperson, a corporate trainer, and a counselor and consultant were the various careers Susan had over the years, until her husband was diagnosed with early-onset Alzheimer’s. Overwhelmed and overcome by it all, Susan started to write, to help get some clarity, understanding and relief. At one point, her husband’s neurologist asked her to speak at a meeting he was going to, and after she spoke, people asked her for her book. After speaking at an Alzheimer’s convention, the same thing happened.
An author was born, a book was written; all a little bit by surprise. Susan believes that writing saved her life, her as she had a place to put all her thoughts, fears, and emotions that were rolling around inside her head. The writings also served as tool to keep track of and follow the illness as it progressed. But most important, it gave her an opportunity to help others by offering support and validation.
Originally from Connecticut, when not speaking, Susan is busy enjoying her new life in Southern California.
Caregiving was not something I thought much about when I was young and raising my children.
But all of that changed with my husband's diagnosis of early-onset Alzheimer's. Suddenly I was thrust into an unfamiliar world of which I had to rapidly come up to speed. I have shared my insights in my book, My Life Rearranged, in hopes it will reach people when they need it and make their caregiving easier. No one is exempt from caregiving but there is no reason to go it alone. My best wishes to you on your journey.
My Life Rearranged: Musings of an Alzheimer Caregiver